National AIA Resource Center
Helping professionals help families affected by drugs and HIV

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Substance Exposed Newborns: Collaborative Approaches to a Complex Issue
June 23-24, 2010

This national summit will bring together colleagues from the fields of health, child welfare, drug treatment, and early intervention to consider effective policies and collaborative approaches to prevent, identify, refer, and address the needs of substance exposed newborns. More...

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Collaborative Approaches to Identifying and Serving Substance Exposed Newborns
In this video, representatives from four federally funded demonstration projects shared their experiences developing policies and procedures to meet the federal Child Abuse Prevention and Treatment Act mandates. More...

Source - Spring 2009
The Source, Fall 2009 [PDF]
Challenges for Mothers with HIV

 

National Abandoned Infants
Assistance Resource Center

University of California, Berkeley
1950 Addison Street, Suite 104 # 7402
Berkeley, CA 94720-7402
Phone: (510) 643-8390
Fax: (510) 643-7019
E-mail: aia@berkeley.edu

Information & Resources : Standby Guardianship

Publications Available Online for Standby Guardianship

Legal Permanency Planning for HIV-Affected Families (The Source, Fall 2000) [PDF]

Larsen, Judith, (2000). Standby Guardian Laws: A Guide for Legislators, Lawyers and Child Welfare Professionals. American Bar Association and Circle Solutions: Washington D.C. [PDF]

Larsen, Judith, (2000). A Social Workers Guide: How Laws and Lawyers Can Help You Help Seriously Ill Parents Plan Stable Futures for Their Children. American Bar Association and Circle Solutions: Washington D.C. [PDF]

Planning for Your Children's Future: A Training Curriculum for Social Workers and Lawyers Working with HIV-Affected Families. (2000). American Bar Association and Circle Solutions: Washington D.C. [PDF]

Looking After The Kids: How Parents With HIV Can Plan For The Future Care And Custody Of Their Children. Body Positive, January 1999, Volume XII, Number 1. [HTML]

Standby Guardianship, and the Use of Written Designations. Virginia Lawyer. December 1999. [HTML]

Standby Guardians for Minor Children: North Carolina Gives a Parent More Control Over Who Raises Minor Children if The Parent Becomes Incapacitated or Dies. The Forum Vol. 1, No. 2, Spring 1996. North Carolina State University. [HTML]

Standby Guardianship Information, Massachusetts Legal Services. [HTML]

 

Bibliography

Journal Special Issues

Families and HIV/AIDS: Special Section. (1997, March). Journal of Family Psychology, 11 (1).

Special Issue: HIV/AIDS and children, youths and families: Lessons learned. (1998, March - April) Child Welfare, 77 (2).

Special Issue. (2000, April). Child and Adolescent Psychiatric Clinics of North America, 9 (2).

Journal Articles

American Academy of Pediatrics: Committee on Pediatric AIDS. (1999). Planning for children whose parents are dying of HIV/AIDS. Pediatrics, 103, 509-511.

Caldwell, M. B., Fleming, P.L., & Oxtoby, M.J. (1992). Estimated number of AIDS orphans in the United States. Pediatrics, 90, 482.

Carten, A. J. (1997, Jan. - Feb.). African American families and HIV/AIDS: Caring for surviving children. Child Welfare, 76 (1), 107-126.

Dumaret, A.C., Boucher, N., Torossian, V., & Donati, P. (1995, July). Children born to HIV positive mothers: Family environment, social support and care. Early Child Development & Care, 112, 65-76.

Fair, C.D., Spencer, E., Weiner, L., & Riekert, K. (1995, June). Healthy children in families affected by AIDS: Epidemiological and psychosocial considerations. Child & Adolescent Social Work Journal, 12 (3), 165-182.

Fanos, J., & Wiener, L. (1994). Tomorrow's survivors: Siblings of HIV infected children. Journal of Developmental and Behavioral Pediatrics, 15 (3), 543-548.

Forehand, R., Pelton, J., Chance, M., Armistead, L., Morse, E., Morse, P. S., & Stock, M. (1999, December). Orphans of the AIDS epidemic in the United States: Transition-related characteristics and psychosocial adjustment at 6 months after mother's death. AIDS Care, 11 (6), 715-722.

Gardner, W., & Preator, K. (1996). Children of seropositive mothers in the U.S. AIDS Epidemic. Journal of Social Issues, 52 (3), 177-196.

Groze, V., Haines-Simeon, M., & Barth, R.P. (1994, February). Barriers in permanency planning for medically fragile children: Drug affected children and HIV infected children. Child & Adolescent Social Work Journal, 11 (1), 63-86.

Herb, A. (1995, May-August). Standby guardianship: A viable legal option for the future care of children. Journal of the American Medical Women's Association, 50 (3-4), 95-8.

Kotchick, B.A. (1997, December). The impact of maternal HIV infection on parenting in inner-city African American families. Journal of Family Psychology, 11 (4), 447-452.

Levine, C. (1995). Orphans of the HIV epidemic: Unmet needs in six U.S. cities. AIDS Care, 7 (Supp. 1), S57-S62.

Lovitch, K. (1996. Spring). State AIDS-related legislation in the 1990s: Adopting a language of hope which affirms life. Nova Law Review, 20 (3), 1187-1229.

McConnell, J. (1995, Fall-Winter). Standby guardianship: Sharing the legal responsibility for children, Maryland Journal of Contemporary Issues, 7 (1), 249-286.

McConnell, J. (1998, Summer). Securing the care of children in diverse families: Building on trends in guardianship reform. Yale Journal of Law and Feminism, 10 (1), 29-67.

Michaels, D., & Levine C. (1992, December). Estimates of the number of motherless youth orphaned by AIDS in the United States. Journal of the American Medical Association, 268 (24), 3456-61.

Molee, L. (1998, January). The ultimate demonstration of love for a child: Choosing a standby guardian under the New Jersey standby guardian act. Seton Hall Legislative Journal, 22 (2), 475-512.

Paige, C.Y., & Johnson, M.S. (1997). Caregiver issues and AIDS orphans: Perspectives from a social worker focus group. Journal of the National Medical Association, 89 (10), 684-689.

Parsons, S., & Merrick-Roddy, P. (1996, September). AIDS Orphans in Louisiana in the year 2000: The potential economic impact on the foster care system. Journal of the Louisiana State Medical Society, 148 (9), 391-8.

Retkin, R., Stein, G. L., & Draimin, B. (1997). Attorney and social workers collaborating in HIV care: Breaking new ground. Fordham Urban Law Journal, 24 (3), 533-565.

Roopenian, L. (1996, Winter). Family, guardians and conservators - Removal of the two-year requirement of pending death or terminal condition. Pacific Law Journal, 27, 799.

Rosenfeld, S. (1996). Developments in child custody for HIV positive parents. Berkeley Women's Law Journal, 11 194-199.

Roth, J. (1994, December). Identifying the mental health needs of children living in families with AIDS or HIV infection. Community Mental Health Journal, 30 (6), 581-594.

Rotheram-Borus, M.J., Draimin, B., Reid, H., & Murphy, D. (1997). The impact of illness disclosure and custody plans on adolescents whose parents live with AIDS. AIDS, 11, 1159-1164.

Rozmus, K. (1998). Representing families affected by HIV/AIDS: How the proposed federal standby guardian act facilitates future planning in the best interests of the child and family. American University Journal of Gender and Law, 6 (2), 299-332.

Schable, B., Diaz, T., Chu, S.Y., Caldwell, M.B., Conti, L., Alston, O.M., Sorvillo, F., Checko, P.J., Hermann, P., Davidson, A.J., & et al. (1995, April). Who are the primary caretakers of children born to HIV-infected mothers? Results from a multistate surveillance project. Pediatrics, 95, 511-5.

Selbin, J., & Del Monte, M. (1998, Spring). A waiting room of their own: The family care network as a model for providing gender-specific legal services to women with HIV. Duke Journal of Gender Law and Policy, 5 (89), 103-132.

Shapiro, L. (1998, Spring). An HIV advocate's view of family court: Lessons from a broken system. Duke Journal of Gender Law and Policy, 5 (89), 133-143.

Shelton, D.L. (1995). AIDS orphans: The forgotten victims. Human Rights, 22 (4), 18-21.

Templeton, L.C., & Quevedo, D. (2000, May). It's never too late to think about your child's future. Positive Living, 37-38.

Stewart, B.M. (1994, Winter). End-of-life family decision-making: From disclosure of HIV through bereavement. Scholarly Inquiry for Nursing Practice, 8, 321-352.

Tompkins, T. L., Henker, B., Whalen, C. K., Axelrod, J., & Comer, L. K. (1999). Motherhood in the context of HIV infection: Reading between the numbers. Cultural Diversity & Ethnic Minority Psychology, 5, 197-208.

Waysdorf, S.L. (1994). Families in the AIDS crisis: Access, equality, empowerment, and the role of kinship caregivers. Texas Journal of Women and the Law, 3 (139), 145-221.

Wiemer, D. (1995, Fall). Implementation of standby guardianship: Respect for family autonomy. Dickinson Law Review, 100 (1), 65-102.

Books

Aronstein, D., & Thompson, B. J. (Eds.). (1998). HIV and social work: A practitioner's guide. Binghamton, New York: Haworth Press

Boyd-Franklin, N., Steiner, G. L., & Boland, M. G. (Eds.). (1995). Children, families, and HIV/AIDS: Psychosocial and therapeutic issues. New York, New York: The Guilford Press.

Catal?n, J., Sherr, L., & Hedge, B. (Eds.). (1997). The impact of AIDS: Psychological and social aspects of HIV infection. Newark, New Jersey: Harwood Academic Publishers.

Dane, B.O., & Levine, C. (Eds.). (1994). AIDS and the new orphans: Coping with death. Westport, Connecticut: Auburn House.

Dansky, S. F. (1997). Nobody's children: Orphans of the HIV epidemic. Binghamton, New York: Harrington Park Press.

Geballe, S. (1998). The crisis within the crisis: The growing epidemic of AIDS orphans. In S. Books (Ed.), Invisible children in the society and its schools. Mahwah, N.J.: Lawrence Erlbaum Associates.

Geballe, S., Gruendel, J., & Andiman, W. (Eds.). (1995). Forgotten children of the AIDS epidemic. New Haven, Connecticut: Yale University Press.

Levine, C. (Ed.). (1992). A death in the family: Orphans of the HIV epidemic. New York: United Hospital Fund.

Lynch, V.J., Lloyd, G. A., & Fimbres, M. (1993). The changing face of AIDS: Implications for social work practice. Westport, Connecticut: Auburn House.

O'Leary, A., & Jermmott, L. (Eds.). (1996). Women and AIDS: Coping and care. New York, New York: Plenum Press.

Stein, T. J. (1998). The social welfare of women and children with HIV and AIDS. New York, New York: Oxford University Press.

Taylor-Brown, S., & Garcia, A. (Eds.). (1999). HIV affected and vulnerable youth. New York, New York: The Hawthorn Press.

Manuals, Manuscripts and Newsletters

Ambia, A. F., Bowman, C., Crehan, M., Davis, C., Garcia, J., Gorenberg, H., & Pinott, M. (1999). Best practices for standby guardianship. (Available from National Abandoned Infants Assistance Resource Center 1999 conference, Permanency Planning: Facing the Challenges of Children and Families with HIV/AIDS, New York, New York)

American Bar Association Center on Children and the Law. (1999). Summary of standby guardianship laws by state. Unpublished manuscript.

Brooklyn Legal Services Corp. B., & Gay Men's Health Crisis. (1994). Facing the future: A legal handbook for parents with HIV disease. New York, New York.

Casey Family Service. (1999). Planning children's futures: Meeting the needs of children, adolescents, and families affected by HIV/AIDS. New York, New York.

Child Welfare League of America. (1997). HIV Permanency Planning News, I.

Child Welfare League of America. (1998). HIV Permanency Planning News, II.

Council on Adoptable Children. (1993). Who will take care of me: A manual for parents with HIV/AIDS. New York, New York.

Draimin, B., & Bauman, L. (1999). Caregivers of children orphaned by AIDS: A survey conducted by the Family Center in collaboration with Albert Einstein College of Medicine. New York, New York: The Family Center.

Ettinger, P. R., Feyler, N., Miller, C., & Polineni, K. (1996). In J.G. Smith, (Ed.). Building bridges: How social service providers can help parents with HIV/AIDS make appropriate custodial decisions for their children. Philadelphia, Pennsylvania: AIDS Law Project.

Families' and Children's AIDS Network: Advocacy Task Force. (1995). HIV-affected children, youth and families in Chicago: Building an advocacy agenda for permanency. Chicago, Illinois: LSC and Associates.

Families in crisis: A report of the working committee on HIV, children, and families. (1996). New York, New York: Federation of Protestant Welfare Agencies.

Family Ties Project. (2000). Facing the future: An introduction to life planning for parents and caregivers. Washington D.C.: Consortium for Child Welfare.

HIV Law Project, & Cicatelli Associates. (1994). Permanency planning worker's handbook: Legal permanency planning options. New York, New York.

Keder, L. (1996). AIDS orphans and life planning in Washington D.C.: Voices of the community. Washington D.C.: Consortium for Child Welfare.

Levine, C., Stein, G., Draimin, B., & Gamble, I. (1994). In whose care and custody? Placements and policies for children whose parents die of AIDS. New York: The Orphan Project.

Levine, C., Brandt, A.M., & Whittaker, J.K. (1998). Staying together, living apart: The AIDS epidemic and new perspectives on group living for youth and families. New York, New York: The Orphans Project.

Merkel-Hoguin, L. (1994). Because you love them: A parent's planning guide. Washington D.C.: Child Welfare League of America.

Merkel-Holguin, L. (1998). Permanency planning for HIV-affected families. Protecting Children, 13 (4), 14-15.

National Abandoned Infants Assistance Resource Center. (1995, Fall). The Source, 5 (2).

Public Counsel Law Center. (2000, May). Peace of mind: Joint guardianship of the person for children whose parents are terminally ill. Los Angeles, CA.

Samerson, Y. (1997). Choices for terminally ill patients: A guide for state lawmakers. American Bar Association Center on Children and The Law.

Simms, A. (1996). Standby Guardianships. NCSL Legisbrief, 3 (38). Washington D.C.: National Conference on State Legislatures.

Stein, G., Levine, C., & Herb, A. (1994, June). New York State's standby guardian law: Recommendations for amendments, implementation, and education. New York: The Orphan Project.

Teare, C. (1994, May-June). Advocates struggle to develop placement options for AIDS orphans. Youth Law News, 15 (3), 1-7.

Videos

A Gift for My Children (Families Talk About Custody Planning), The Family Center, 66 Reade Street, New York, NY 10007, 212-766-4522 [HTML]

Bigger Than This Manhattan (Kids Talk About Ill Parents), The Family Center, 66 Reade Street, New York, NY 10007, 212-766-4522 [HTML]

Mommy, Who'll Take Care of Me, Connecticut Public Television, Hartford, CT 06110, 203-278-5310 [HTML]

The Tomorrow's Children Face When a Parent Dies, Aquarius Productions, Inc., Powderhouse Lane, Sherborn, MA 01770, 508-651-2963

What About My Kids? Gay Men's Health Crisis, West 24th Street, New York, NY 10011, 1-800-AIDS-NYC [HTML]

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